Did you ever just know that your child was special, or maybe just a little different? If your answer is yes, or maybe then this group is the group for you. I started a Facebook support group a few weeks back after my daughters diagnosis. Let me back track a bit.
Our daughter was born a month or so early, and from the moment she was born we knew something was special about her. We went home in a timely manner even though she came home with jaundice and a heart murmur everything seemed okay. Then she started having a hard time breastfeeding, and keeping the milk down. Which meant she wasn't gaining weight. For the first month she barely gained anything, her jaundice took sometime to go away, and we were told that if she didn't start gaining weight, and the jaundice didn't start to go away she would have to be admitted back to the hospital. One of the saddest moments for me as a knew mom, I felt as though I had failed. We switched to formula, and no matter which one we tried she just couldn't keep it all down. We even tried putting rice in her bottle but that didn't help. However she was finally gaining weight and he jaundice was going away, so we didn't have to go back to the hospital. Eventually my daughter was diagnosed with acid reflux and a lactose sensitivity. She had tried so many different formulas, and by the time we got to milk even the lactose free milk didn't help stop the reflux. That was the beginning of our journey which has just begun. Our daughter has recently been diagnosed with SPD ( sensory processing disorder) hypersensitivity, along with speech delay and behavioral issues. This doesn't mean my daughter is mean or doesn't know how to behave.
I started this group to help find support here on the Cape as well as across the country. My main focus is here on our tiny island. I found it difficult going to play groups with other kids when my daughter has trouble understanding personal space. Now some will say no 2.5 year old knows what personal space is, and I would agree. With my daughter it is a little bit more complicated than that. With this new group I want to be able to bring parents and children with special needs together, talk and gain new prospective from other parents. I don't want to have to explain why my daughter is touching you even though she has been asked many times to please stop.
With this group I hope to accomplish this, to make friends who understand, and for my daughter to be able to make friends without fear of judgement. I know there are other moms, dad, grandparents, aunts, and uncles out there searching for a group like the one I've started. Like me they don't know where to look. I went searching for one the day we came home with her diagnosis, and was unable to locate one on the Cape or surrounding areas. I want to encourage others to come check out our group, share your stories, vent if you need to. This group is a no judgement group. Not all kids are easy and not all kids are the same, and in our group we understand this. The group is called "Special needs speaks" it is a closed group so you will have to ask to join. However keeping it closed means keeping everyone's vents and issues privately within the group. You are not alone in this, there are others who are going through similar issues with their kiddos. We want to be here for you if and when you need us.
Check out below for the ways to get in touch with me and join our group!
Email - SamanthaSturtevant38@gmail.com
Facebook - https://www.facebook.com/Samantha.Sturtevant6
I am owner and blogger for Hungry hungry mommys
Facbook for HHM - https://www.facebook.com/hungryhungrymommy/
Facebook for Special needs speaks - https://www.facebook.com/groups/specialneedsspeaks/
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