Did you ever just know that your child was special, or maybe just a little different? If your answer is yes, or maybe then this group is the group for you. I started a Facebook support group a few weeks back after my daughters diagnosis. Let me back track a bit.
Our daughter was born a month or so early, and from the moment she was born we knew something was special about her. We went home in a timely manner even though she came home with jaundice and a heart murmur everything seemed okay. Then she started having a hard time breastfeeding, and keeping the milk down. Which meant she wasn't gaining weight. For the first month she barely gained anything, her jaundice took sometime to go away, and we were told that if she didn't start gaining weight, and the jaundice didn't start to go away she would have to be admitted back to the hospital. One of the saddest moments for me as a knew mom, I felt as though I had failed. We switched to formula, and no matter which one we tried she just couldn't keep it all down. We even tried putting rice in her bottle but that didn't help. However she was finally gaining weight and he jaundice was going away, so we didn't have to go back to the hospital. Eventually my daughter was diagnosed with acid reflux and a lactose sensitivity. She had tried so many different formulas, and by the time we got to milk even the lactose free milk didn't help stop the reflux. That was the beginning of our journey which has just begun. Our daughter has recently been diagnosed with SPD ( sensory processing disorder) hypersensitivity, along with speech delay and behavioral issues. This doesn't mean my daughter is mean or doesn't know how to behave.
I started this group to help find support here on the Cape as well as across the country. My main focus is here on our tiny island. I found it difficult going to play groups with other kids when my daughter has trouble understanding personal space. Now some will say no 2.5 year old knows what personal space is, and I would agree. With my daughter it is a little bit more complicated than that. With this new group I want to be able to bring parents and children with special needs together, talk and gain new prospective from other parents. I don't want to have to explain why my daughter is touching you even though she has been asked many times to please stop.
With this group I hope to accomplish this, to make friends who understand, and for my daughter to be able to make friends without fear of judgement. I know there are other moms, dad, grandparents, aunts, and uncles out there searching for a group like the one I've started. Like me they don't know where to look. I went searching for one the day we came home with her diagnosis, and was unable to locate one on the Cape or surrounding areas. I want to encourage others to come check out our group, share your stories, vent if you need to. This group is a no judgement group. Not all kids are easy and not all kids are the same, and in our group we understand this. The group is called "Special needs speaks" it is a closed group so you will have to ask to join. However keeping it closed means keeping everyone's vents and issues privately within the group. You are not alone in this, there are others who are going through similar issues with their kiddos. We want to be here for you if and when you need us.
Check out below for the ways to get in touch with me and join our group!
Email - SamanthaSturtevant38@gmail.com
Facebook - https://www.facebook.com/Samantha.Sturtevant6
I am owner and blogger for Hungry hungry mommys
Facbook for HHM - https://www.facebook.com/hungryhungrymommy/
Facebook for Special needs speaks - https://www.facebook.com/groups/specialneedsspeaks/
* Note from the Editor: Cape Cod Moms does not often post on political or religious issues. We understand that every mom and situation is different and we support you in your choices. We felt that in light of the current information regarding Planned Parenthood, that there may be moms in our community who may be affected in a negative way and we want to make sure they have the option to seek support if they choose with the information below.
After publication: CAPE COD MOMS received this message after posting this post and the person then blocked us: "While I appreciate the fact that you are trying to help any mom that may have had a negative experience with Planned Parenthood, the inflammatory language of the post has informed my decision to no longer follow you on facebook." If the person had read our intro, they would have seen that Cape Cod Moms did not take a stance on this issue, we shared an Adviser post after much thought because we felt that perhaps there were moms out there who may need the help." As CLEARLY stated on our website: "ALL thoughts and opinions always belong to the author of the blog not to Cape Cod Moms." We are sorry this person chose to delete and block us as a resource after thinking we were inflaming an issue when we were offering support to those who may need it. We encourage people to support all opinions even if we do not agree with them and to support other moms in the community even if their opinion differs. After all if all our opinions were the same, the world would be a very boring place.
By Tracy Lamperti, LMHC, BCETS
Lamperti Counseling & Consultation
My heart goes out to the 55 million babies whose life has been snuffed out by these people lost in the industry of Planned Parenthood. My heart goes out equally to the millions of young girls and women who have been swallowed up by these people. Abortion has nothing to do with "planned parenthood" OR "choice." The NUMBER ONE REASON girls and woman give for having an abortion is, "I FELT LIKE I HAD NO OTHER CHOICE." Anyone reading this who is hearing the news about Planned Parenthood and feeling devastated about how they were advised, treated or what MAY have happened to them, please know that you can contact me and I will meet with you confidentially, no paperwork, no insurance, no money exchanged and I will support you. Healing and peace is available to you and I will stand with you.
Tracy Lamperti, LMHC, BCETS
Lamperti Counseling & Consultation
Through my journey of being a Preemie mother, I have met some amazing men and women who are the proud parents of Preemie angels. These tiny children are born into the arms of loving parents, but are needed in a higher place than here on earth. Some may live for hours, others days or even weeks. I give all my adoration tothose who have loved and lost, and those who carry the wings of their angels on their hearts forever. Know that you are not alone, and there is much support for parents as well as siblings.
My name is Vanessa, and I am the proud mother of two beautiful children. My son, Aiden was born at a full term 38 weeks, and with an easy pregnancy as well as delivery. So when I found out I was pregnant with my daughter, I was excited. After four long months of morning sickness, and twenty pounds shed, I thought I had passed the “hard” part of my pregnancy. But boy was I wrong!
At just 20 weeks along, I was diagnosed with Pregnancy induced hypertension, and was put on not one but two blood pressure medications, to lower my rollercoaster blood pressure. With a four year old at home, Bed rest was not really an option, so I continued my everyday lifestyle as a working mother. But at 22.3 weeks, I was rushed to Cape Cod Hospital where my diagnoses had changed to Preeclampsia. From there I was headed to Boston where they have a NICU.
I had zero time to pack, make arrangements for my son, or even call my job before they had me in an Ambulance and headed for the city. I was admitted to Brigham & Women’s where I spent 3.5 weeks attached to monitors, IV’s, and given multiple medications in the attempt to hold of the delivery of my little girl. But at just 26 weeks, the doctors couldn’t hold off any longer, and I was scheduled for an emergency
C-section. My daughter Annika, weighed 1 pound 4 ounces, and was 12.2 inches long. I barely had sight of her before they rushed her off to the NICU, and I was sent to recovery, alone.
I remained on the post-partum floor where the sound of happy mothers and crying babies was agonizing. It took three full days before I was able to see my baby, and the sight of her was an emotional waft that cannot be put into words.
There lay this tiny little person who I had carried for 6 months, and yet I didn’t know her. She was hooked
to IV’s, monitors and a CPAP machine helping her breath. She was inside an Isolette, and was under UV lights to help her skin. Her skin was red and wrinkled, and her hands the size of bottle caps. I had heard of mothers who had babies like this, but never in a million years imagined that I would be one of them. She remained in the NICU for 78 days before being discharged home, just after Christmas.
The experience of being a “Preemie” mom has changed me, and I wouldn’t give it up for the world. Living here on Cape Cod is a blessing, with the ocean so close, the tightness of our communities, and the child friendly atmosphere we all want to raise our children in. However, it can also be very isolated, especially during a stay in a Boston NICU. I have created a Facebook group called “Preemie Mamas on Cape Cod”, where moms of Premature babies of all ages and gender can group together as a “family”. We share advice,
Photos, experiences and are planning a few play dates throughout the year. Please join us, and know that it is hard being a Preemie parent, but you’re NOT alone. http://www.facebook.com/groups/365948863437350/
Vanessa is the latest Cape Cod Mom to join our blogging team! She will be posting blogs on all things preemie on the 2nd and 4th Mondays of every month! Join us in following her journey!
"I meet my best friends in playgroup, and my kids are now 13 and 16."
"If it wasn't for your Lap Babies group, I would still be in my pajamas. Thank you for getting me out of the house!"
"I moved to the Cape and didn't know a soul. After attending your playgroup with my daughter, I made friends and so did she."
"Thank you making me, and my wiggley child, feel so welcome in Music and Movement. This group is perfect for us!"
Real quotes from real moms: if you close your eyes, you can almost here the relief in all of their voices. All of our groups are free and open to anyone with children birth to school age.
We're the Coalition for Children and we are looking for you! Registrations are available at your local library (Falmouth, Mashpee, Bourne, and Sandwich), or by calling (508) 548 0151 x 172. Once you register, follow up phone calls will go out by the first week in September and groups start the week of September 12th. Drop in groups will start at the same time, and there is no registration necessary for drop ins. Don't be left out. Call today!
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